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Clinicians

Supporting medical professionals in understanding and managing HOD. Access clinical insights, research opportunities, and collaborative tools to improve patient care and advance knowledge of this rare disease.

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Clinical Awareness

Recognizing HOD Symptoms

A survey of the CoRDS HOD Patient Registry reveals a set of common symptoms to help practitioners identify HOD earlier. While not exhaustive, these include dizziness, numbness, spasticity, and double vision. Increased awareness can lead to quicker diagnosis and better patient outcomes.

Common Symptoms:

  • UDizziness
  • UNumbness
  • USpasticity
  • UDouble vision
A rotating GIF of a transparent human skull with the brain visible inside. The olivary bulbs are highlighted in green.
Trusted Care Network

Recommended Practitioners

In collaboration with patients and caregivers, HODA has compiled a list of healthcare providers experienced in managing HOD. This resource aims to connect patients with practitioners who understand the complexities of the disease and can provide informed, compassionate care.

Trusted Care Network

Recommended Practitioners

In collaboration with patients and caregivers, HODA has compiled a list of healthcare providers experienced in managing HOD. This resource aims to connect patients with practitioners who understand the complexities of the disease and can provide informed, compassionate care.

A rotating GIF of a transparent human skull with the brain visible inside. The olivary bulbs are highlighted in green.
Join the Map

Be Featured as an HOD Practitioner

Are you a clinician familiar with HOD? Join our HOD Practitioner Map to be recognized as part of a select group committed to improving care for this rare condition. Let us know by submitting your information. We’d be proud to include you.

A rotating GIF of a transparent human skull with the brain visible inside. The olivary bulbs are highlighted in green.
A rotating GIF of a transparent human skull with the brain visible inside. The olivary bulbs are highlighted in green.
Advisory & Research Roles

Join Our Advisory Boards

HODA welcomes medical professionals and researchers to contribute their expertise through our External Medical and Scientific Advisory Boards. Whether guiding patient care, reviewing the latest medical findings, or leading new research projects, your involvement helps shape the future of HOD understanding and treatment. Opportunities are open to degreed practitioners, doctoral candidates, and postdoctoral researchers in neuroscience.

Stay connected and be a part of our community

No matter where you are in your HOD journey, you have a community ready to walk beside you.