Clinical Awareness
Recognizing HOD Symptoms
A survey of the CoRDS HOD Patient Registry reveals a set of common symptoms to help practitioners identify HOD earlier. While not exhaustive, these include dizziness, numbness, spasticity, and double vision. Increased awareness can lead to quicker diagnosis and better patient outcomes.
Common Symptoms:
- UDizziness
- UNumbness
- USpasticity
- UDouble vision

Trusted Care Network
Recommended Practitioners
In collaboration with patients and caregivers, HODA has compiled a list of healthcare providers experienced in managing HOD. This resource aims to connect patients with practitioners who understand the complexities of the disease and can provide informed, compassionate care.
Trusted Care Network
Recommended Practitioners
In collaboration with patients and caregivers, HODA has compiled a list of healthcare providers experienced in managing HOD. This resource aims to connect patients with practitioners who understand the complexities of the disease and can provide informed, compassionate care.
Join the Map
Be Featured as an HOD Practitioner
Are you a clinician familiar with HOD? Join our HOD Practitioner Map to be recognized as part of a select group committed to improving care for this rare condition. Let us know by submitting your information. We’d be proud to include you.

Advisory & Research Roles
Join Our Advisory Boards
HODA welcomes medical professionals and researchers to contribute their expertise through our External Medical and Scientific Advisory Boards. Whether guiding patient care, reviewing the latest medical findings, or leading new research projects, your involvement helps shape the future of HOD understanding and treatment. Opportunities are open to degreed practitioners, doctoral candidates, and postdoctoral researchers in neuroscience.


