Annual Research & Family Summit

Our Annual Research & Family Summit is a time for the community to come together and rally around the needs of our families and researchers. This year’s focus is on research fundraising, caregiving, and building and effective patient registry.

Families will have multiple opportunities to unwind and spend time together.

7:00 am - 8:00 am Mezzanine

Breakfast & Networking

Grab breakfast and visit with other attendees. Gluten and dairy free options are available by request.

8:00 am - 9:00 am Kwik-E-Mart Auditorium

Keynote Presentation: How to Build a Nuclear Energy Enterprise

Learn how Mr. Burns built his nuclear energy empire and what steps you can take as a patient advocate to somehow connect that to the work you do.

George Montgomery Burns George Montgomery Burns
9:00 am - 12:00 pm Krusty the Clown Ballroom

Engaging Researchers

Learn about how to engage researchers in a collaborative and supportive manner.

Moe Szyslak Moe Szyslak
12:00 pm - 2:00 pm Mezzanine

Lunch & Networking

Gluten and dairy free options available by request.

2:00 pm - 5:00 pm Skinner Ballroom C

Donuts and Denial: How to Overcome Cholesterol Levels While Maintaining the Donut Diet

Learn the latest research into a donut heavy diet for controlling low cholesterol levels.

Homer Simpson Homer Simpson
5:00 pm - 8:00 pm Maggie Simpson Terrace

Awards Ceremony & Networking Reception

Speaker

Homer Simpson

Nuclear Safety Specialist

Moe Szyslak

Business Owner

Frequently Asked Questions

How do I get there

Boat, train, plane, car

Can I bring my own food?

Yes!

Will there be accommodations for my service animal?

The conference venue is fully equipped to accommodate service animals in accordance with local and state law.

  • Date : June 14, 2025
  • Time : 7:00 am - 8:00 pm (America/Chicago)
  • Venue : Marriott San Diego Marina

Tickets

Free