So, you’re new to the community? Perhaps you’ve been around awhile but haven’t been able to speak up for medical or mental health reasons. Maybe you’ve been a silent lurker and meanwhile, you feel called to help out in some capacity. You have ideas and opinions and want them to be shared, particularly with the community. Or, in the event that you see a need within the community that we haven’t filled just yet, there are many ways to get involved.
Share your story!
You can submit your patient story with a photo to us at contactus@hodassoc.org to spread awareness through your own experience. If you’re not quite comfortable writing your own story, send us an email and/or phone number and we can have our editor contact your directly to help flesh out your story! We want to share your words so others will know they aren’t alone. Nothing compares to the feeling of community when stories are shared.
Board Service Volunteer
Consider filling out our Board Interest Form and finding a place on our governing board today! We are looking for people with and without board experience. Patients, professionals, family, and friends are all welcome to apply. If you have a passion for helping others, we want to meet you!
Other opportunities to Help
Maybe volunteering is too much right now. We understand! We have a few ways to easily support HODA with minimal effort on your part!
- Sign up for Rare Patient Voice using our affiliate link, and it will be a win for all of us! You don’t need to have a rare diagnosis to sign up, either! If you have any medical diagnosis, you can register with RPV and have the opportunity to participate in surveys related to your diagnosis. You can earn up to $120 per hour if you are selected to participate in a study, survey, or group. And it is ALWAYS up to you if you want to participate. Added bonus, HODA receives $10.00 for each sign up! You can participate by clicking on this LINK.
- Need supplies to help with this HOD life? Why not shop our must-have’s list? There is no added cost to the product, and HODA will earn a small commission on each purchase. Need something that isn’t in our list? Let us know, and we will add it! Drop us a line at ContactUs@HODAssoc.org.
Participate in the HOD Patient Registry
Did you know that the simplest yet most impactful way that you can help make HOD history is to join our HOD Patient Registry? It’s true! Our registry is histed by Sanford CoRDS. The good folks at CoRDS have made it easy to participate! You can do the entire registry online HERE Not comfortable with that? You can register and have a paper copy of the registry mailed to you, and complete it at your own pace. All you have to do is mail it back to them and they will handle the data entry. Still not comfortable? There is also an option to have a representative call you and complete the registry over the phone with you. Talk about accessible!
Be a Hero! Be an Ambassador!
Our community is growing and we need more Ambassadors! Time for you to GET INVOLVED! What is the commitment? As newly diagnosed patients and care givers sign up for the program, we assign them to a seasoned HOD partner to help them through those first few bumpy months. Certainly, it is difficult to forget those times! We like to view it as ‘the buddy system’. We anticipate questions about what to expect, what kinds of tests to request, what sorts of therapies help (or don’t help), and how to deal with and accept this new life with HOD.
You can share as much or as little of your experience as you like. We ask that you think back to the days when you were first diagnosed, and what you would have wanted Be a Hero! Be an Ambassador! Simply complete the Volunteer Interest Form and we will be in touch with you soon.
Become a Financial Supporter
We know that you are bombarded with requests to give by many important causes. Consequently, you may have stacks of free address labels from your favorite organizations. HODA will not drown you in requests to part with your hard-earned money because we know that it is hard enough as it is to meet the daily financial commitments. However, we would encourage you to consider a small, monthly donation. This is the easiest, most hands-off way to GET INVOLVED!
We are a micro-community that needs and deserves your help. Much of our community is disabled with very little income. Our organization is 100% volunteer, and every donation helps more than you can imagine.
