by benforred | Dec 5, 2024 | Awareness, Living with a Rare Neurological Disease, Navigating Disability, Rare Disease Community, Support
Hi everyone. HOD patient, HODA Lead Ambassador, blogger when I feel like it (www.myinvisiblebff.com), and blog guest-poster, Erin here! Today, I want to share some tips on managing fatigue. Today I wanted to share a few ways to describe your fatigue. According to the... by benforred | Oct 5, 2024 | Awareness, Rare Disease Community
Making our community aware plays a vital role in the success of any campaign. This is especially true in the rare disease arena. Because our patient cohorts are so small, there is no motivation for science and industry to take on our cause. This is where the community...