by benforred | Dec 5, 2024 | Awareness, Living with a Rare Neurological Disease, Navigating Disability, Rare Disease Community, Support
Hi everyone. HOD patient, HODA Lead Ambassador, blogger when I feel like it (www.myinvisiblebff.com), and blog guest-poster, Erin here! Today, I want to share some tips on managing fatigue. Today I wanted to share a few ways to describe your fatigue. According to the... by benforred | Nov 5, 2024 | Living with a Rare Neurological Disease, Navigating Disability, Rare Disease Community, Support
Holiday stress can be dangerous for people with neurodegenerative disease. Holiday festivities are full of sights, sounds, and smells that can cause head pain in ‘normal’ folks! Not to mention the social toll that gatherings take on our brains. Did someone... by benforred | Oct 25, 2024 | Living with a Rare Neurological Disease, Navigating Disability, Rare Disease Community, Support
Support groups are just about everywhere for almost everything. There is a great reason for that. It’s because they work! HODA offers both patient and care partner support groups once a month. You can reserve your spot in the group on our interactive event...