by benforred | Aug 30, 2024 | Uncategorized
When HOD is the diagnosis, strange symptoms are always involved. “My head spins and my knees turn to jelly.” That is what I told my doctor about 11 ½ years ago. This was probably pretty vague, and I don’t know if anything was done at this time. I can’t remember all... 
by benforred | Aug 25, 2024 | Living with a Rare Neurological Disease, Rare Disease Community, Uncategorized
New symptom trauma is a very real thing. I have had more than one conversation this month about the life expectancy and rate of decline in HOD patients. I sit here in these early morning hours, feeling like a fraud. You see, I emphatically spoke on the subject,...