by benforred | Jul 25, 2024 | Living with a Rare Neurological Disease, Patient Stories, Rare Disease Community
By: Emily and Ian Johnstone Emily and Ian have written this story, with some minor edits by HODA Admin My name is Emily. I am a 47 year-old mum of one daughter, Ella, and wife to a husband, Ian. We live in the old city of Oxford in the United Kingdom. Coincidentally,...